{"id":710,"date":"2015-02-06T16:48:32","date_gmt":"2015-02-06T22:48:32","guid":{"rendered":"http:\/\/afemom.org\/?p=710"},"modified":"2015-02-06T16:48:32","modified_gmt":"2015-02-06T22:48:32","slug":"another-afe-tragedy-another-year-of-more-work-needs-to-be-done","status":"publish","type":"post","link":"https:\/\/stephaniearnold.net\/es\/2015\/02\/06\/another-afe-tragedy-another-year-of-more-work-needs-to-be-done\/","title":{"rendered":"Another AFE Tragedy, Another Year of More Work Needs to be Done."},"content":{"rendered":"

\"photo\"<\/a>This week a married couple, both medical students, welcomed their first child into the world, but the mom never got a chance to hold her baby. \u00a0She\u00a0died of an AFE<\/a>. \u00a0In the scant 20 months since my son Jacob was born, my outspoken nature about my own AFE and survival seems to have been benefiting pregnant moms and medical professionals in ways I could only imagine.\u00a0But in the face of this\u00a0news, I realize there is much more work to be done.<\/p>\n

Still, I’m grateful to be alive and grateful people continue to be interested in what is on the horizon. \u00a0Since my December 2013 interview on Good Morning America<\/a>, viewed by millions, which shockingly trended “behind”\u00a0Miley’s infamous twerkfest on Yahoo!<\/a>, a lot of people started talking about AFE. \u00a0That’s great, because it\u00a0is such an obscure and poorly understood medical complication that continues to kill nearly half of all women it affects. The numbers the AFE Foundation\u00a0received last week are the latest figures in how rare it actually is: 1 in 40,000. \u00a0We need much more attention on the second leading killer of\u00a0mothers.<\/p>\n

To recap: \u00a0I suffered an Amniotic Fluid Embolism during delivery, actually “coded” for 37 seconds, was revived into a 6-day coma, and both my son Jacob and I miraculously survived. So far, it looks like there is no apparent further complications (other than some memory issues) – a rare outcome with AFE, which more often leaves the mother neurologically impaired or, worse, dead.<\/p>\n

\"AnesthesiaI believe that my luck, combined with my intuition, led my delivery team to make unusual preparations in the event my premonitions came true. \u00a0I followed my intuition, spoke up, requested consultations, my doctors listened and they responded. \u00a0They are heroes<\/a>. I am such a huge advocate of anesthesia that I make myself available to the American Society of Anesthesiology<\/a>\u00a0 for whatever they need. \u00a0I would not be alive without them.<\/p>\n

 <\/p>\n

Because of you and the desire to learn more,\u00a0a major publisher will be releasing my book\u00a0in the\u00a0Fall of 2015 that will talk about, among other things, medical miracles, spirituality, premonitions, patient self-advocacy (“If you SENSE something, SAY something”<\/span>), regression therapy and all that it reveals.<\/p>\n

The moment I came back to life was the moment I knew there was a reason for all of\u00a0it. \u00a0Some people may never know the reason for their traumatic experience, but I am clear on my message. \u00a0And I will share that insight in the months to come.<\/p>\n

I am hopeful\u00a0the attention to my case through different avenues\u00a0will allow me to tell the\u00a0story and cast a promising\u00a0light on the possibility for treating and saving other moms. I am hopeful it will\u00a0spur\u00a0attention to research on better treatment and perhaps a cure.\u00a0 Hopeful that other AFE affected families will be encouraged to submit their medical records for AFE research to the Baylor University study<\/a>. \u00a0And hopeful that AFE families will continue to share their stories here and elsewhere.<\/p>\n

I was fortunate, but I never forget that many are not. \u00a0My scars, therapy and other long term affects from AFE pale in comparison to\u00a0losing one’s\u00a0life. \u00a0This week’s news reminds me quite clearly, that a\u00a0new father was born with the arrival of his baby, but at a\u00a0cost no new family should have to endure.<\/p>\n

\"MirandaThe AFE Foundation<\/a>\u00a0recently elected me to their Board of Directors<\/a> where I humbly join the company of some brilliant medical professionals, researchers, and of course their energetic founder Miranda Klassen<\/a>.\u00a0Herself an AFE survivor like me.<\/p>\n

If one mom can do all this, just think how much more we can do if your voice joins ours? \u00a0I’m asking you to share your stories here, report AFE incidents<\/a> to the AFE Foundation, subscribe to this blog, follow my Twitter<\/a> and Facebook<\/a> conversations (StephArnold37), engage with anything on the subject. \u00a0Publish what you think deserves a broader audience and shed some attention to the medical research work where it is needed. \u00a0If you want to donate to the AFE Foundation to help support that research, you can do so by clicking here<\/a>:<\/p>\n

\"DonateToAFEsupportDotOrg\"<\/a><\/p>\n

Rare diseases get little study, but with AFEs occurring at the rate of 2 per week in the United States alone, it is all but rare for the families it affects. Let’s change that!<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

In the scant 18 months since my son Jacob was born, my outspoken nature about my own AFE ordeal and survival seems to have been benefiting pregnant moms and medical pros in ways I could only have hoped, and I’m grateful for that. But in the face of today’s news, my progress seems never enough. You can help.<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_wp_convertkit_post_meta":{"form":"-1","landing_page":"0","tag":"0","restrict_content":"0"},"footnotes":""},"categories":[5,20,25],"tags":[39,43,71,73,78,90,96,97,99,101],"class_list":["post-710","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-patient-education","category-share-your-story","tag-afe","tag-amniotic-fluid-embolism","tag-infertility","tag-intuition","tag-medical-miracles-2","tag-patient-advocacy","tag-pregnancy","tag-premonition","tag-regression-therapy","tag-spirituality-2"],"acf":[],"yoast_head":"\nAnother AFE Tragedy, Another Year of More Work Needs to be Done. - Stephanie Arnold<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/stephaniearnold.net\/es\/2015\/02\/06\/another-afe-tragedy-another-year-of-more-work-needs-to-be-done\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Another AFE Tragedy, Another Year of More Work Needs to be Done. - Stephanie Arnold\" \/>\n<meta property=\"og:description\" content=\"In the scant 18 months since my son Jacob was born, my outspoken nature about my own AFE ordeal and survival seems to have been benefiting pregnant moms and medical pros in ways I could only have hoped, and I'm grateful for that. 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