{"id":651,"date":"2014-11-11T15:54:23","date_gmt":"2014-11-11T21:54:23","guid":{"rendered":"http:\/\/afemom.org\/?p=651"},"modified":"2014-11-11T15:54:23","modified_gmt":"2014-11-11T21:54:23","slug":"a-mom-like-me","status":"publish","type":"post","link":"https:\/\/stephaniearnold.net\/es\/2014\/11\/11\/a-mom-like-me\/","title":{"rendered":"SURVIVING MEANS SOMETHING."},"content":{"rendered":"

Many friends and family have mentioned to me about the mom who coded for 45 minutes after having what appears to be an AFE.<\/p>\n

ANOTHER MOM. ANOTHER AFE. ANOTHER MIRACLE.<\/p>\n

Ruby Graupera-Cassimiro is lucky. \u00a0She most likely will tell you that. \u00a0She is lucky to be able to be with her family, to be the mom she was anticipating to be, and to be healthy. \u00a0I feel the same way. \u00a0It is all too close a call. \u00a0There are women who haven’t survived as well as we have. \u00a0There are women who have lost their children as a result of this deadly condition. \u00a0There are women who lose their marriages because the husbands can’t handle everything that comes with surviving it. Mostly, though, there are women who do not survive, leaving families gutted and children without their mothers.<\/p>\n

All the media attention Ruby<\/a> is receiving right now does amazing things for our cause. \u00a0It educates the audience to this rare and deadly illness. \u00a0It shows that one has to put up a hell of a fight in order to survive. \u00a0And it shows there still is a lot to be done about AFE’s.<\/p>\n

The AFE Foundation<\/a> is the number 1 resource on most of these news articles. \u00a0They have the latest information on the statistics, the diagnostics and the research into this deadly condition. \u00a0Even your own doctor will not likely have the most up to date information, if only because it is such a rare event that most doctors will never have seen one in their entire career. \u00a0They don’t need to have all of the information at their fingertips.<\/p>\n

Miranda Klassen<\/a> founded the AFE Foundation after having her own AFE 6 years ago. \u00a0She has been instrumental in giving suffering families resources. \u00a0She been the point person to help families in need, and she is the one they call when they need answers. \u00a0And now, with the advent of social media, the Amniotic Fluid Embolism discussion group on Facebook has amassed hundreds of survivors and families of loved ones who lost their lives. \u00a0We now have peer-to-peer support on topics you can’t even imagine you would ever discuss after experiencing an AFE. \u00a0For instance, one woman was diagnosed with Sheehan syndrome, (a condition that\u00a0can occur in a woman who bleeds severely during childbirth. Sheehan syndrome is a type of\u00a0hypopituitarism<\/a>).\u00a0She was diagnosed 10 years AFTER her AFE. \u00a0That put all of us on notice to go get tested. \u00a0And it is another reality we will have the possibility of dealing with after surviving. \u00a0But we would never have that information or this group unless the media did what they are doing with Ruby’s story today.<\/p>\n

\"10679568_10204703051993864_6318440935823766814_o\"
Jonathan, Me, (L to R) Adina, Jacob and Valentina<\/figcaption><\/figure>\n

Miranda’s\u00a0work and all of the families affected by AFE need\u00a0to talk about their experiences. \u00a0I know it is difficult. \u00a0In many ways, families want to move past this and get back to normal life. \u00a0But like it or not, life will never be the same. To survive is a responsibility to the families who were not as fortunate. \u00a0We cannot ignore that women are losing their lives each and every week to this violent disorder. \u00a0Dr. Julie Levitt, my OBGYN, has yet to have another AFE patient, thank goodness, but that doesn’t mean she is not prepared for the worst case scenario if it happens. And given the statistics, it might happen.<\/p>\n

I\u00a0have made it my life’s mission to work with people who suffer from pregnancy complications, to support moms in need and to educate every day that G-d allows me to breathe.<\/p>\n

I spoke with my anesthesiologist, Dr. Nicole Higgins, today regarding Ruby’s miraculous recovery and she reminded me of how precious those seconds are that make a difference between life and death. \u00a0Here is a link to some of the work we are doing with the American Society of Anesthesiologists<\/a>. \u00a0During an operation, they are who hold your life in their hands.<\/p>\n

Supporting this cause<\/a>\u00a0can help families remain intact and make the moment of delivery a memorable, happy one.<\/p>\n

If you are an AFE mom, please share your stories here and on the AFE Facebook forum. \u00a0Please have the courage to speak up because many others will never have a chance to raise their voices again. \u00a0Please post pictures, tell people how harrowing your story was and why more needs to be done. \u00a0Post your AFE baby and tell us how they are hitting benchmarks,\u00a0growing, learning and how the AFE experience has changed your life.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

Many friends and family have mentioned to me about the mom who coded for 45 minutes after having what appears to be an AFE. ANOTHER MOM. ANOTHER AFE. ANOTHER MIRACLE. Ruby Graupera-Cassimiro is lucky. \u00a0She most likely will tell you that. \u00a0She is lucky to be able to be with her family, to be the…<\/p>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_wp_convertkit_post_meta":{"form":"-1","landing_page":"0","tag":"0","restrict_content":"0"},"footnotes":""},"categories":[1],"tags":[],"class_list":["post-651","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"yoast_head":"\nSURVIVING MEANS SOMETHING. - Stephanie Arnold<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/stephaniearnold.net\/es\/2014\/11\/11\/a-mom-like-me\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SURVIVING MEANS SOMETHING. - Stephanie Arnold\" \/>\n<meta property=\"og:description\" content=\"Many friends and family have mentioned to me about the mom who coded for 45 minutes after having what appears to be an AFE. 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