Miranda is not just an AFE survivor. This courageous woman started the AFE Foundation, enlisted a team of top medical experts, and in just 6 short years has served over 300 families worldwide.
Below are some highlights from our recent tweetchat. It’s a bit lengthy to post here, so if you want the whole story click here.
You can join me on Twitter at @StephArnold37; Miranda’s Twitter handle is @AFEFOUNDATION. Join us on future tweetchats by following Twitter hashtag: #AFEchat. All my social channel links – Pinterest, Instagram, YouTube, etc. – can be found here, or in this blog’s sidebar menu.
Stephanie: What was the most shocking thing you found in your research?
Miranda: The most shocking thing was to learn women were still dying in childbirth in the US; also that AFE is so poorly understood. I felt it was our mission to build awareness.
Stephanie: What has been the feedback from survivors and bereaved families?
Miranda: It has been incredible. We get to walk with families in their time of greatest need and give them the support and answers they need. We are also giving the moms we have lost to AFE a voice, and their families an opportunity to create a legacy for them. Sharing our stories is empowering and part of the healing process. It also opens up the dialogue.
Stephanie: What has been a common theme from families in need of the foundation’s help?
Miranda: Support. Knowing they are not alone. Having a place to share their unique experience in a safe place, guided by experts.
Stephanie: What do you say to families of victims of this horrible condition?
Miranda: Those are the hardest conversation. I share with them that we’re fighting for the answers they deserve and that we will not forget.
I conclude here as I often do, with this personal advice to all, based in part on the important role that my own self-advocacy, and the incredible support from my husband and my medical team, played in my survival: If you sense something, say something.
Until next time, feel free to Follow me on Twitter at @StephArnold37 to learn about upcoming tweetchat summaries, stories from other moms and families, and other resources. Or just subscribe to this blog. Either way, thanks!